Having a say and planning aheadHaving a say about the care and treatment we receive is fundamental to person-centred health care. Next week is National Advance Care Planning Week, raising awareness of the importance of people writing down what they want ahead of time, in case they become unwell and unable to say what they want to happen in future health care. This is an important issue in mental health, where people may be seeking support during a crisis or undergo compulsory treatment, and unable to say at that time what they want. Mental health advance directives allow people to write what they want for future care - including treatment they would or would not want to receive, and what family or carers they would like involved. Research shows that mental health advance directives can reduce coercion and increase satisfaction with care. However, there is low use of mental health advance directives -because people are not aware of them, face difficulties in writing one, or don’t trust it will be followed. There are different legal rules across states and territories about how mental health advance directives are enforced, and cultural issues in ensuring health professionals respect and implement patient’s wishes where they are able to do so. There is also a basic problem of health professionals not knowing if someone has a mental health advance directive or being able to read it. An update to My Health Record is addressing this, with a new option for people to upload an advance care planning document to their My Health Record. People have control over their My Health Record, and can choose what to upload, who can access their information, and can change or remove an advance care planning document. Having a mental health advance care planning document in My Health Record means people don’t need to remember paper copies, and health professionals can quickly and safely access the document if needed. Mental Health Australia has been working with the Australian Digital Health Agency to increase awareness of this option to upload a mental health advance directive to My Health Record and will be sharing messages and resources through social media throughout next week. We invite you to check out our webpage, share the social posts, and talk with those around you about having a say in your health care. Ingrid Hatfield Acting Director, Policy & Research |